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sun beds and steroids Options
Lorraine5
#1 Posted : Wednesday, March 31, 2010 4:41:32 PM Quote
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is it ok to go on sunbed if youve only had steroid injection as i have to before i go on holliday only couple times so skin ready for heat so i dont burn i did it 2 years ago but wasnt on meds then please could someone tell or help me thankyou plus it helps deppresionConfused BigGrin
bethbrown
#2 Posted : Wednesday, March 31, 2010 4:47:28 PM Quote
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I've done sun beds whilst on steroids, mtx and leflunomide and then 1 week in the sun - all without a problem or burning. My thoughts were like yours -it's a great way to avoid burning in the first couple of days.
jeanb
#3 Posted : Wednesday, March 31, 2010 6:23:50 PM Quote
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Eeeks - you MUST be careful in hot sun when on mtx, girls! Have a great holiday - wish I was coming with you
Lots of love
Jeanxxxx
amanda_lewin
#4 Posted : Wednesday, March 31, 2010 6:58:22 PM Quote
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Yes, one must be extremely careful in the sun whilst on MTX, it can make one much more sensitive to the sun. You may even feel hotter.

Amanda
jenni_b
#5 Posted : Wednesday, March 31, 2010 7:26:33 PM Quote
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hi

I would double the moisturiser if you are on steroids with a sun bed- I know for sure that you must wear strong factor sun cream while on the MTX.

i know that sunbeds have extra high levels of UV so you must be careful not to get burnt etc.

IMO, Fake it!

Jenni xx
how to be a velvet bulldoser
LynW
#6 Posted : Wednesday, March 31, 2010 8:13:37 PM Quote
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Definitely watch out for the sun if you are on either Methotrexate or steroids; both can cause photosensitivity and severe sunburn. The recommendation is to avoid the sun between 10am and 4pm and at all other times use a high factor cream. Sunbeds using ultra-violet light shouldn't even be considered on these meds!

Stick with the 'fake' it's not worth the risk!

Lyn x

My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Tabbycat
#7 Posted : Thursday, April 01, 2010 8:30:12 AM Quote
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I've used sunbeds in the past, until my father died of skin cancer. I definitely wont be using them again. Steroids thin your skin making it more susceptible to damage. Personally I wouldn't take the risk.
Carol
Lorraine5
#8 Posted : Thursday, April 01, 2010 3:38:58 PM Quote
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how many times you been on sunbed beth since you started meds are you still going on them i only want to do it before i go away but i do love them to beth brown
Damned76
#9 Posted : Thursday, April 01, 2010 4:11:08 PM Quote
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I've done it whilst on methotrexate but not steroids. Only did minimum time twice a week 2 weeks before hol.

Julie
bethbrown
#10 Posted : Thursday, April 01, 2010 4:30:51 PM Quote
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Lorraine

I have had sunbeds twice a week - only 2 weeks before a holiday (only 4 sessions). !st 2 sessions only 3 minutes, then 6 minutes each session till I go away. 1st day in the sun - limited time.
I do not have them any other time - just in preparation for a hot holiday!
I did also check with the consultant as soon as I was on meds - to make sure it would be ok to have sunbeds prior to a holiday.
The last holiday we did, I was also having infliximab infusions.

Where are you off to?

Beth x
jeanb
#11 Posted : Thursday, April 01, 2010 5:04:08 PM Quote
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I'd still urge caution. This is contrary to the advice given by my consultant!
bethbrown
#12 Posted : Thursday, April 01, 2010 5:25:36 PM Quote
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I wonder why the consultants give conflicting advice - very confusing to us lay people when all we want to do is the right thing.
I now feel really torn.
There’s so much we have to give up/alter when awful RA affects us –
Lovely footwear
Tights
Getting down on the floor to join in with grandchildren
Being able to go bowling, play tennis etc etc etc
And now tanning before hols!!!!!!!!!!!!!!!!!!!! grrrrrrr
I know you all understand
Sad Sad Sad Sad
jeanb
#13 Posted : Thursday, April 01, 2010 5:39:05 PM Quote
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Oh Beth - these wonderful consultants OFTEN give conflicting advice on all sorts of issues and, as you say, it's all extremely confusing! Mine told me that on no account should I sit in the sun on holiday and take good care to cover myself up. I must be the only woman on earth to come back from 3 weeks in the Carribean completely white!!!

Where are you off to? Somewhere hot and exotic I hope - oh - have you got space for a little 'un in your suitcase?

As for the other stuff - mmm Sad Sad. I also hated not being able to hold my grandson and now not being able to pick up my granddaughter. As for the shoes - don't start me off about shoes!!!!!! RA is a bummer. Let's give it up over EasterRollEyes

Lots of love
Jeanxxxxx
bethbrown
#14 Posted : Thursday, April 01, 2010 5:44:04 PM Quote
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Thanks Jean. Egypt, early summer and soooooo looking forward to it!
LynW
#15 Posted : Thursday, April 01, 2010 7:39:20 PM Quote
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Hi Lorraine and Beth

I agree with Jean and Carol. My consultant definitely advises "no sun beds" and only absolute minimum "sun exposure". I think the reason for conflicting advice is that some consultants are simply more aware than others due to their own patients experiences. Life is difficult when all we want is an answer, but to give specialists their due I don't think they can be expected to have all the answers. After 22 years I'm still finding things I didn't know about the disease and I'm living with it. Although they work with the condition daily there are so many different responses to differing situations, what works for one doesn't for another. It's very difficult for them too!

If you could see my hands you would appreciate the damage done to thinning 'steroid' skin due to overexposure to European sun. The warmth of the sun does wonders for my joints but alas the skin on my hands blistered badly requiring hospital treatment. This wasn't hours spent kipping out on a beach either it was walking around a sunny town with very high factor sun cream on all exposed bits! The blisters burst leaving raw skin which became infected and then when healed scarred. I now have hands that are spattered with white blotches and a constant reminder to "avoid" sun at all costs!

RA does mean there are things we can't do but its amazing how much more you can appreciate the things you are able to do. Be positive and let the negatives go, they will hold you back, you will become stronger and enjoy what you do have that much more.

I'm off to Cyprus in August (all that sun!), but will enjoy reading in the shade (safely) soaking up the balmy rays, listening to music, taking photos, watching the boys in and out of the pool, being served lovely cooling drinks and delicious fresh fruit by my other half but best of all I will appreciate early morning and late evening strolls around the sights and relatively quiet roads on which to get around! Looking forward to it so much.

I'm sure Egypt will be fab and so much to see and do. Hope you have a lovely time Beth Smile

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

bethbrown
#16 Posted : Friday, April 02, 2010 12:24:31 PM Quote
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Jean

I didn't know you could GIVE IT UP?Unsure
Please, please tell me how!!!!!!!!!!!!


sigh - If only!

Bethx
bethbrown
#17 Posted : Friday, April 02, 2010 1:54:50 PM Quote
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Thanks Lyn

Scary how we can be affected when we have this awful RA. Sorry to hear how badly you were affected by the sun. It has certainly heightened my awareness!

Take care
Beth
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